Auckland Breast Cancer Register (ABCR) follows a strict protocol in researching, storing and utilizing data:

  • Data is key-coded by authorised personnel (Data Managers) only who are bound by their employment contract to maintain confidentiality, and
  • Reported data in presentations and publications are always de-identified, that is, no information by which a patient can be identified will be released or published.

As an observational research project, patient care management is not affected by the measurement of outcome using data from the Register. If a patient requires information about his/her care management, he/she can contact his/her breast specialist or GP.

If a patient requires any further information about ABCR and his/her participation in this research study, he/she can contact the register staff.

If a patient has further concerns regarding his/her rights as a participant in this research study, he/she can contact an independent Health and Disability Advocate. This is a free service provided under the Health and Disability Commissioner Act. They can be reached at: