Data request form

To request data from Auckland Breast Cancer Register (ABCR), the requestor must download and complete the data request form and email it to breastcancerregister@adhb.govt.nz

By submitting this form, the data requestor agrees to comply with ABCR requirements on the process of requesting and presenting data:

  • All data requests are presented, discussed and approved at the Study Group’s Executive Team meetings. This form has to be received at least a week prior to the meeting. Contact The Register Staff to enquire about meeting dates;
  • Data requests that do not require patient National Health Index (NHI) number may use the ABCR’s Health and Disability Ethics Committee (HDEC) approval number for their research project;
  • At the discretion of the Executive Team, a data extraction and preparation fee may be charged to the data requestor;
  • Only de-identified information from ABCR data are presented or published;
  • ABCSG/ABCR has to be acknowledged as the source of data (or as one of the sources of data) in the research abstract, published work, report or slide presentation;
  • A copy of the published or presented work in any format (Microsoft Word, PDF, Powerpoint or printed copy) must be forwarded to ABCSG/ABCR at the completion of the project;
  • The completed online request form will be acknowledged by one of the Data Managers when received and the decision will be conveyed after the meeting;
  • The data requestor has the obligation to inform ABCR in the event that the research project ceases or discontinues.

GP follow-up form

Click here for a sample of the GP follow-up form for our breast cancer patients.